FEb 6th
I had this" care package" sent to my house from the LA Down Syndrome Association. I had originally contacted them asking for help with navigating the CA social service system etc. They asked for my address and asked if they could share our names with other DS families. I declined. I just don't think I'm ready to be talking to other families that may be taking a different approach to the diagnosis in their children. We're on a very different and some would call radical road than most.So they gave me these phamplets and books with pictures of adorable lovely children all with the same diagnosis. I looked through everything and then decided to put the bag in the back of my closet. I thought" If I ever need it I can refer to it." It basically was telling me about support groups and information like that. Ruby has amazing Dr's that keep us very up to date on how to treat each of her particular symptoms such as her pulminologist Dr. Ishander and her cariologist at UCLA . Her pediatrician has refferred us to every kind of specialist we need.
So today I was cleaning out my closet and I was going to move the bag of information to somewhere else in my house. I made a decision. I grabbed the whole bag books and all and took it out to the trash and I said" Screw you devil! She doesn't have this syndrome and I make no agreements with it. I don't want any part of it in my house. So there!"
That was just my way of getting the thought of even agreeing for a second she'll be growing up with this syndrome out of my house and my mind. I am set on the fact that in Jesus name She is healed!
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