. HI guys I'll let my publicist Barbara write this one update below on our family....thanks for your love and prayers this email is from her.
My heart was so sad to hear this news of Ruby's test results but again...I have a choice. I believe God is faithful.
Today I woke up and turned to a verse that said" there is healing in the tongue!" God doesn't LIE
Hello friends
There are several developments with Ruby that I want to share with you. Last week the Pulmonologist as a precaution decided to repeat the all night sleep test at the hospital before making final decision about taking her off oxygen. Kerri received a call yesterday that she was still having some desats (stopping breathing) and sleep apnea so she will have to continue to use the oxygen at night. She has some nasal congestion and the doctor said that may contribute to the problem but it also may be caused from a slightly enlarged tongue. We ask for prayers her tongue is perfect!
We have several specific prayer requests and the first of course being that her lungs will strengthen and she will be able to discontinue the oxygen. The other being that her muscle tone mainly in her neck, arms, and legs will strengthen and aline and that her tongue is perfectly sized and not causing any problems. Also please pray that her congestion will clear up.
On the positive side both the physical therapist and occupational therapist who come twice a week say her muscles are getting stronger each visit and she is making good improvement.Her vision test was absolutely perfect!
Some of you have also asked about Mark and he also needs prayer. He is taking a very strong medicine for psoriasis which is working but also has serious side effects, one being a compromised immune system so he has had a very severe respiratory infection since we arrived He felt well enough to drive up over the weekend and sounded better but he has to take another shot this week. Please pray for stronger immune system as he works with kids all day and picks up their germs.
Our family is so appreciative of all your prayers and we know that God hears and answers our prayers. Ruby is such a Joy to all of us and is the sweetest baby in the world. Nana is teaching her to sing "Jesus Loves Me" and she responds by cooing and laughing. Her big sister also spends time talking and playing with her so we know they will be a team as Ruby gets older. It's so much fun to watch them together.
.
Blessings,
Barbara
Monday, February 21, 2011
Saturday, February 12, 2011
College
I'm going to start a college fund for Ruby. Lucy has one. When I make these decisions there is a still small voice that says" What are you doing? You know this might be wasted."
Then a bigger voice says" No ! I'm stepping out in faith and I'm putting it ALL out there." I want my daughter to look back and say" Thanks Mom for believing...and doing every single thing you could to show your faith in me and our big God, even when I was only 3 months old!"
Then a bigger voice says" No ! I'm stepping out in faith and I'm putting it ALL out there." I want my daughter to look back and say" Thanks Mom for believing...and doing every single thing you could to show your faith in me and our big God, even when I was only 3 months old!"
Friday, February 11, 2011
A Call from a friend
Just on the days when I need it most God steps in. I wrote yesterday about Psalm 103 and God healing ALL our diseases. My friend Steph call me after not talking for months today. She was praying for my family and she said God gave her a scripture to share with me..guess what it was Psalm 103!
It's such a beautiful letter from God to me. It says" Go Kerri Go! You cheer on Ruby with Go Ruby Go ! I'll cheer on you!"
I love you Im with you. I'm for you! I'm doing this with you. Miracles sometimes happen instantly..healings sometimes happen gradually." I will not get down on the timing.God has my back. I pray for her today...her tongue. I want it to be perfectly sized and proportioned just like every single other body part. I will not stop praying and commanding every cell and organ in her body to come into alignment with God's perfect design.
Ruby Joy you are perfectly and wonderfully made!
Love
Mama
It's such a beautiful letter from God to me. It says" Go Kerri Go! You cheer on Ruby with Go Ruby Go ! I'll cheer on you!"
I love you Im with you. I'm for you! I'm doing this with you. Miracles sometimes happen instantly..healings sometimes happen gradually." I will not get down on the timing.God has my back. I pray for her today...her tongue. I want it to be perfectly sized and proportioned just like every single other body part. I will not stop praying and commanding every cell and organ in her body to come into alignment with God's perfect design.
Ruby Joy you are perfectly and wonderfully made!
Love
Mama
Wednesday, February 9, 2011
Wed
Ruby had physical therapy today. She rolled over again by herself and we worked together on some more muscle activities with her great therapist Mellissa. These can be wonderful but hard for me. I wish she didn't need physical therapy at all. I wish I felt that she was totally totally 100% healed already and didn't look any different than the other babies. I constantly have to stop myself from measuring her success of failures . It's not going to serve me well raising her later or my 3 yr. old. Lucy wanted to cuddle with Ruby today so I let her. It's still about Ruby "surviving her sister" on a daily basis. Lucy can be um...."spirited."
I cried out to God today after her session..tears....."God I'm praying. I'm reading. I'm standing in faith. I'm doing everything. I m trying to rest ....then I see something I don't like and I just think there's more I should do. Is it my faith that will determine when her healing manifests? If so...how can I be more faithful? And yet God you tell me it's done. You tell me not to worry that I won't be put to shame. That anyone who puts their faith in you will NOT be put to shame Psalm 25! I'm doing it God! I'm putting it out there. I need you to step in ! Please help me today.
I prayed over Ruby God healed you from all diseases! All Ruby! Today she rolled over again. She is strong!
I cried out to God today after her session..tears....."God I'm praying. I'm reading. I'm standing in faith. I'm doing everything. I m trying to rest ....then I see something I don't like and I just think there's more I should do. Is it my faith that will determine when her healing manifests? If so...how can I be more faithful? And yet God you tell me it's done. You tell me not to worry that I won't be put to shame. That anyone who puts their faith in you will NOT be put to shame Psalm 25! I'm doing it God! I'm putting it out there. I need you to step in ! Please help me today.
I prayed over Ruby God healed you from all diseases! All Ruby! Today she rolled over again. She is strong!
Tuesday, February 8, 2011
Big News
Today Feb 8th Ruby rolled over all by herself. She's only 14 weeks ! So take that devil! How's that for a low muscle tone diagnosis?
This is really happening before our eyes. She's being healed. WE SEE!
God is showing off....we love it! Go Ruby Go! Go Ruby Go! That's how we cheer for her in our family!
This is really happening before our eyes. She's being healed. WE SEE!
God is showing off....we love it! Go Ruby Go! Go Ruby Go! That's how we cheer for her in our family!
Monday, February 7, 2011
Shopping
Last night I made a decision. It's been almost 12 months and I haven't bought any new clothes. I know I was prego and then "getting over being prego!"
But now I hate to admit despite my best efforts my old clothes don't quite fit...YET!
But I'm ok. I have decided to get some "transitional" clothes ie: Fat Clothes to tide me over . Yes I'm doing bootcamp and yes I'm working on it. But it's a slow process. Oh Ruby! I will thank you for this body years from now.
This afternoon I got invited to a prayer meeting and they said they'd love to pray for Ruby's healing. I thought I should cancel my shopping plans with my friend Dana to drive to Orange County just to get Ruby prayer. Now we were at a prayer meeting last night for Ruby and come to think of it about a million other prayer meetings. The kid had Heidi Baker herself pray for her healing and she had her own personal prayer session at PIHOP. Pasadena House of Prayer.
But I struggled with what to do. I think I was getting legalistic convincing myself I was a bad mom if I didn't get Ruby in the car to yet ANOTHER prayer meeting. This daughter and I have been all over the state of CA to prayer meetings and she's been amazingly happy at every one.I've taken her to conferences and the words spoken over her have been awesome. Perfect strangers come up to me saying the same things" I see her on a stage singing for the Lord. "
So I decided to have a night for mommy! I went to TJMaxx with Dana after I cooked dinner for everyone. I came home and I feel good. I feel like I deserve a night to treat myself. I did give birth afterall! That's gotta be worth some sparkly clothes!
But now I hate to admit despite my best efforts my old clothes don't quite fit...YET!
But I'm ok. I have decided to get some "transitional" clothes ie: Fat Clothes to tide me over . Yes I'm doing bootcamp and yes I'm working on it. But it's a slow process. Oh Ruby! I will thank you for this body years from now.
This afternoon I got invited to a prayer meeting and they said they'd love to pray for Ruby's healing. I thought I should cancel my shopping plans with my friend Dana to drive to Orange County just to get Ruby prayer. Now we were at a prayer meeting last night for Ruby and come to think of it about a million other prayer meetings. The kid had Heidi Baker herself pray for her healing and she had her own personal prayer session at PIHOP. Pasadena House of Prayer.
But I struggled with what to do. I think I was getting legalistic convincing myself I was a bad mom if I didn't get Ruby in the car to yet ANOTHER prayer meeting. This daughter and I have been all over the state of CA to prayer meetings and she's been amazingly happy at every one.I've taken her to conferences and the words spoken over her have been awesome. Perfect strangers come up to me saying the same things" I see her on a stage singing for the Lord. "
So I decided to have a night for mommy! I went to TJMaxx with Dana after I cooked dinner for everyone. I came home and I feel good. I feel like I deserve a night to treat myself. I did give birth afterall! That's gotta be worth some sparkly clothes!
Oxygen FREE ! She's not needing it!
Today I took Ruby's oxygen tube and unplugged it. Lucy was cleaning her play room and I wanted to bring Ruby in there too. I had left Ruby lying on the futon bed and I came back in and she was all alone smiling. She's always so content and happy. The only time she cries is if she's in pain like last night when daddy was trimming her nails and he accidentally got her skin. Sometimes she cries when she has a wet diaper but otherwise the kid is amazing.
I just layed my body over hers and looked her right in the eyes and started cheering with her. "Go Ruby Go!
You are healed. !"
Then I sang" My name is Ruby and I am strong. My name is Ruby and I like this song. My name is Ruby and I am healed. I am healed. I am strong. " I always make up my own songs . The cutest thing happened. She started smiling and cooing and singing with me. I called Ron and Lucy in to see her. We had a great family time singing to her and with her. She's going to get off oxygen tomorrow completely and we just rejoice that today she is healed. She is happy. She is singing and laughing with us. "My name is Ruby! I am a miracle." I keep repeating it over and over so she can hear me and so can the devil. I made up a song . I sing with her almost everyday and so does Lucy. It's called the" I am Healed song. We've been singing it for weeks.
I AM HEALED I AM HEALED BY THE BLOOD OF JESUS
I AM A CHILD OF THE LORD
AM HEALED I AM HEALED BY THE BLOOD OF JESUS
I AM FULLY RESTORED
I AM FULLY RESTORED
It's so simple but so true. So what are waiting for? Make up a song! Sing mine. I'll share. Sing it to the mountain tops loud enough for satan to know you're serious and you're not afraid to claim your full restoration.
Do it! Go...now...no time to waste!
I just layed my body over hers and looked her right in the eyes and started cheering with her. "Go Ruby Go!
You are healed. !"
Then I sang" My name is Ruby and I am strong. My name is Ruby and I like this song. My name is Ruby and I am healed. I am healed. I am strong. " I always make up my own songs . The cutest thing happened. She started smiling and cooing and singing with me. I called Ron and Lucy in to see her. We had a great family time singing to her and with her. She's going to get off oxygen tomorrow completely and we just rejoice that today she is healed. She is happy. She is singing and laughing with us. "My name is Ruby! I am a miracle." I keep repeating it over and over so she can hear me and so can the devil. I made up a song . I sing with her almost everyday and so does Lucy. It's called the" I am Healed song. We've been singing it for weeks.
I AM HEALED I AM HEALED BY THE BLOOD OF JESUS
I AM A CHILD OF THE LORD
AM HEALED I AM HEALED BY THE BLOOD OF JESUS
I AM FULLY RESTORED
I AM FULLY RESTORED
It's so simple but so true. So what are waiting for? Make up a song! Sing mine. I'll share. Sing it to the mountain tops loud enough for satan to know you're serious and you're not afraid to claim your full restoration.
Do it! Go...now...no time to waste!
A Step in Faith...Call me Crazy I Don't Care
FEb 6th
I had this" care package" sent to my house from the LA Down Syndrome Association. I had originally contacted them asking for help with navigating the CA social service system etc. They asked for my address and asked if they could share our names with other DS families. I declined. I just don't think I'm ready to be talking to other families that may be taking a different approach to the diagnosis in their children. We're on a very different and some would call radical road than most.So they gave me these phamplets and books with pictures of adorable lovely children all with the same diagnosis. I looked through everything and then decided to put the bag in the back of my closet. I thought" If I ever need it I can refer to it." It basically was telling me about support groups and information like that. Ruby has amazing Dr's that keep us very up to date on how to treat each of her particular symptoms such as her pulminologist Dr. Ishander and her cariologist at UCLA . Her pediatrician has refferred us to every kind of specialist we need.
So today I was cleaning out my closet and I was going to move the bag of information to somewhere else in my house. I made a decision. I grabbed the whole bag books and all and took it out to the trash and I said" Screw you devil! She doesn't have this syndrome and I make no agreements with it. I don't want any part of it in my house. So there!"
That was just my way of getting the thought of even agreeing for a second she'll be growing up with this syndrome out of my house and my mind. I am set on the fact that in Jesus name She is healed!
I had this" care package" sent to my house from the LA Down Syndrome Association. I had originally contacted them asking for help with navigating the CA social service system etc. They asked for my address and asked if they could share our names with other DS families. I declined. I just don't think I'm ready to be talking to other families that may be taking a different approach to the diagnosis in their children. We're on a very different and some would call radical road than most.So they gave me these phamplets and books with pictures of adorable lovely children all with the same diagnosis. I looked through everything and then decided to put the bag in the back of my closet. I thought" If I ever need it I can refer to it." It basically was telling me about support groups and information like that. Ruby has amazing Dr's that keep us very up to date on how to treat each of her particular symptoms such as her pulminologist Dr. Ishander and her cariologist at UCLA . Her pediatrician has refferred us to every kind of specialist we need.
So today I was cleaning out my closet and I was going to move the bag of information to somewhere else in my house. I made a decision. I grabbed the whole bag books and all and took it out to the trash and I said" Screw you devil! She doesn't have this syndrome and I make no agreements with it. I don't want any part of it in my house. So there!"
That was just my way of getting the thought of even agreeing for a second she'll be growing up with this syndrome out of my house and my mind. I am set on the fact that in Jesus name She is healed!
And So It Begins
Do you Believe in Miracles? The Healing of my Daughter Ruby Joy McGehee
Feb 6th 2011
People ask me if I'm going to record this journey . After all,I do make my living as a writer among other things. Funny enough I haven't put pen to paper about my little Ruby girl outside of emails begging and pleading people to pray, then celebrating with wonderful answers.
Today I am going to make this real. I'm going to record every step I can of this healing miracle journey and one day it will be a story for the record books. God loves a happy spectacular ending but many people will ask me about the beginning and the middle. Those times are of course the hardest, especially the middle. It's the middle when you're waiting for your miracle that I believe is the make or break time.It where you show your true colors. How strong are you?
You have a question to answer...are you going to stand in expectation, unwavering in your faith and your belief in your promise from God? Or are you going to roll over and let satan completely steal your joy and hope. I really hate to admit this but I think most well meaning Christians choose the latter option. I don't blame them. I've done it myself. Miracles aren't exactly easy to come by. If there was a step by step plan I think we'd all be receiving them on a daily basis and we'd have no need most of the Dr's therapists, homeopathic cures, infomercial's and many other things we put our faith in before God.
The bottom line is I had to make a decision. I had to decide if I was going to take God at his word? Would he heal my daughter? Would he heal her from a so called earthly incurable disease. There is no pill , no supplement, or any known treatment for Downs Syndrome. If you google "healed from down syndrome" there are a few examples of people being healed but it's all been because of one thing..one simple thing....FAITH. God gets ALL the Glory in this one and we can prove it on paper.There are other families out there that had children born and diagnosed with the same syndrome that Ruby was and they went straight to the word of God and see what God had to say about it.
In the Bible that I read it says" God heals all diseases as long as they are not genetic because medical science hasn't gotten up to speed on that yet and neither has God!"
I know what you're thinking...."What Version is that?"That's not my version. I'm kidding. My God says" Put your trust in me and lean not on your own understanding. Acknowledge me in all your ways and I will make your path straight!" My God says " I am the same God yesterday today and tomorrow. I will heal your diseases."
So who am I to doubt Him? I just had no idea a mere 14 weeks ago I'd be putting this to the test in a very huge way. I didn't sign up for this club"the mother of a special needs baby who spent 6 weeks in the nicu". No way! I had a perfect pregnancy and on Oct 28th when my water broke, I had absolutely no idea what lay right around the corner. Little did I know in a few short hours our whole world would be forever changed and we would be completely different people because of a little girl named Ruby Joy.
I've decided to record this journey to her full manifestation of healing because well, God told me to. I know in my heart when I take the stage all over the world with my completely functional healed little girl Ruby Joy. Others are going to ask me "How did this happen? How did you pray her well? What did you do? " Right now I'm seeking that very answer from anyone that I think will be helping in seeking Ruby's total deliverance from every lying symptom in her body. I want to be a forerunner for other families out there that have had children diagnosed with earthly diseases that want to see a miracle.
The question I have to ask myself is" Do I believe in miracles? Really believe with my whole heart that my father God loves to show up and show off? Do you? If you're interested in reading and praying along with our family I invite you join us. No we don't know what is around the next corner. We literally take one day at a time. But I try to think of it more as an exciting adventure than anything scary. I have not been given a spirit of fear but of power a sound mind. I am powerful. I will fight for my daughter. I will lean on God's promises.She will manifest her healing on earth. Watch and see.
Feb 6th 2011
People ask me if I'm going to record this journey . After all,I do make my living as a writer among other things. Funny enough I haven't put pen to paper about my little Ruby girl outside of emails begging and pleading people to pray, then celebrating with wonderful answers.
Today I am going to make this real. I'm going to record every step I can of this healing miracle journey and one day it will be a story for the record books. God loves a happy spectacular ending but many people will ask me about the beginning and the middle. Those times are of course the hardest, especially the middle. It's the middle when you're waiting for your miracle that I believe is the make or break time.It where you show your true colors. How strong are you?
You have a question to answer...are you going to stand in expectation, unwavering in your faith and your belief in your promise from God? Or are you going to roll over and let satan completely steal your joy and hope. I really hate to admit this but I think most well meaning Christians choose the latter option. I don't blame them. I've done it myself. Miracles aren't exactly easy to come by. If there was a step by step plan I think we'd all be receiving them on a daily basis and we'd have no need most of the Dr's therapists, homeopathic cures, infomercial's and many other things we put our faith in before God.
The bottom line is I had to make a decision. I had to decide if I was going to take God at his word? Would he heal my daughter? Would he heal her from a so called earthly incurable disease. There is no pill , no supplement, or any known treatment for Downs Syndrome. If you google "healed from down syndrome" there are a few examples of people being healed but it's all been because of one thing..one simple thing....FAITH. God gets ALL the Glory in this one and we can prove it on paper.There are other families out there that had children born and diagnosed with the same syndrome that Ruby was and they went straight to the word of God and see what God had to say about it.
In the Bible that I read it says" God heals all diseases as long as they are not genetic because medical science hasn't gotten up to speed on that yet and neither has God!"
I know what you're thinking...."What Version is that?"That's not my version. I'm kidding. My God says" Put your trust in me and lean not on your own understanding. Acknowledge me in all your ways and I will make your path straight!" My God says " I am the same God yesterday today and tomorrow. I will heal your diseases."
So who am I to doubt Him? I just had no idea a mere 14 weeks ago I'd be putting this to the test in a very huge way. I didn't sign up for this club"the mother of a special needs baby who spent 6 weeks in the nicu". No way! I had a perfect pregnancy and on Oct 28th when my water broke, I had absolutely no idea what lay right around the corner. Little did I know in a few short hours our whole world would be forever changed and we would be completely different people because of a little girl named Ruby Joy.
I've decided to record this journey to her full manifestation of healing because well, God told me to. I know in my heart when I take the stage all over the world with my completely functional healed little girl Ruby Joy. Others are going to ask me "How did this happen? How did you pray her well? What did you do? " Right now I'm seeking that very answer from anyone that I think will be helping in seeking Ruby's total deliverance from every lying symptom in her body. I want to be a forerunner for other families out there that have had children diagnosed with earthly diseases that want to see a miracle.
The question I have to ask myself is" Do I believe in miracles? Really believe with my whole heart that my father God loves to show up and show off? Do you? If you're interested in reading and praying along with our family I invite you join us. No we don't know what is around the next corner. We literally take one day at a time. But I try to think of it more as an exciting adventure than anything scary. I have not been given a spirit of fear but of power a sound mind. I am powerful. I will fight for my daughter. I will lean on God's promises.She will manifest her healing on earth. Watch and see.
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